Following diagnosis, the highest among a patient's thoughts will be these … "I'm going to die?", "I'll be in so much pain?". Since there is no cure for mesothelioma, it is important that the patient is advised that with modern treatment possible for months or years, live a normal life for most of the time. And that modern drugs are very effective at controlling pain and relieving it.
Obviously, the treatment aspect is extremely important and the patient and closerelatives must ensure that they get the consultant and doctors to fully explain how everything is going to work. It is advisable to compile a list of questions to ask medical staff before any appointments or consultations and to have a close relative or friend to go ahead with the patient.
I recommend you look on the internet for information about the disease and print the relevant bits. I did this when my father was diagnosed with stomach cancer. When I showedthe consultant what I studied, I heard a more open debate and perhaps some more technical details were covered that otherwise might have been.
There is nothing wrong with taking notes with you and you might even consider taping the discussion. These are potentially very stressful and upsetting meetings which might mean that you do not remember everything that was said. You'll want to know where and when the treatments will take place.
Includes questions about sideeffects and the range and type of drugs they take. And how the drugs are taken, injection, orally, intravenously, etc.
Difficulties arise when a question is asked how long the patient was able to live. It 'impossible for doctors to predict the future exactly for an individual patient and it would put too much pressure on them if they did. This uncertainty is not good for the patient and vague answers do not satisfy anyone. I would push the doctor toAn educated guess based on his experience and success that has at hand. This is just my opinion. I want to know months, if I (could be two or three) or years (which could be 12 months).
Fears can often be worse than reality. For this reason it is important to gather more knowledge about the disease and the disease possible. Discussing this new knowledge with friends and relatives can help relieve stress as the treatment.
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